Better Health Through Information Sharing

Connecting for Health is working to realize the full potential of networked information sharing to improve health and health care, while protecting the privacy and security of personal health information. Welcome from Carol Diamond.

Markle Collaborators Recommend 'Blue Button' For Downloads

Nearly 50 organizations declare their support for a set of privacy and security practices to help people download their health records.

Meaningful Use Final Rule Marks a New Beginning for Health Care and Health IT

New federal rules on financial incentives for health IT are an important window of opportunity for providers, hospitals, and patients.

Blue Button Challenge

Markle and the Robert Wood Johnson Foundation challenge developers to demonstrate useful services by using sample data from Medicare and the VA.

Health in a Networked Life

Health in a Networked Life is an exploration of the social and cultural changes resulting from an increasingly interconnected tracked society.

Objective Standards Needed for Evaluating Information Breaches

Markle Connecting for Health and the Center for Democracy and Technology focus on the need for objective standards for judging whether a data breach presents significant risk.

New Paradigm for Population Health Data

A new article in Health Affairs by Carol Diamond, Clay Shirky and Farzad Mostashari urges networked models for analyzing population health data.

'Magical Thinking' about Health IT

Carol Diamond and Clay Shirky write in Health Affairs that one of the biggest obstacles to expanding use of health IT may be a narrow focus on how to stimulate its adoption.

Key Requirements for Health IT Investments to Improve Health Care

Advisory brief outlines critical attributes and expectations for health information technology investments.

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The Common Framework's Personal Health Technology Initiative intends to enable and increase participation by consumers in their health and their health care through the use of networked Personal Health Records (PHRs) and related technologies.

IMPACT: The Common Framework in Action

"... our members tell us they are very concerned about privacy, identity theft, and data loss. The Common Framework approach gives consumers a basis for trusting that the new health information networks will work to reflect these concerns." » Read more

— John Rother, Director of Policy & Strategy, AARP

Connecting for Health Re-releases Framework to Increase Consumer Participation and Protect Information
One year later, the Consumer Common Framework continues to garner widespread endorsement and support from all areas of industry, government, and the non-profit sector.

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The Common Framework helps health information networks to share information among their members and nationwide while protecting privacy and allowing for local autonomy and innovation. It consists of a set of 17 mutually-reinforcing technical documents and specifications, testing interfaces, code, privacy and security policies, and model contract language.

IMPACT: The Common Framework in Action

"With the Common Framework, the CFH project achieved a quantum step forward in conceiving the NHIN and making it practicable. Prior to its development, discussions on the operating approach and the architecture were so wide-ranging as to create confusion and frustrate meaningful debate." » Read more

— Wes Rishel, Research Vice President, Government and Healthcare, Gartner, Inc.

Connecting for Health Responds to Government on E-Prescribing Incentive Program
A collaborative response urges focus on information to drive better medication management.

Critical Approaches to Analyzing Data for More Effective Health Care Treatments
Presented by Carol Diamond at the Summer 2008 IOM Roundtable on evidence-based medicine.

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Connecting for Health has begun a program exploration on how the Common Framework can support the nation's goals of improving the health of entire populations.

IMPACT: The Common Framework in Action

"At NIH, we know that a widely used and trusted network will be essential for the next generation of biomedical research... Connecting for Health is an excellent model!" » Read more

— Mary Jo Deering, PhD, Director for Informatics Dissemination, National Cancer Institute, National Institutes of Health

Better Decisions for Many, Not More Data for the Few
Carol Diamond's presentation at the Institute of Medicine promotes 21st Century thinking for population data challenges.

Future Vision Scenarios
An illustrated vision for how health professionals, consumers, and others can be connected to timely health information.

Connecting for Health Responds to Government on Quality Data Stewardship
Collaborative response to the AHRQ/AQA Request for Information Regarding a National Health Data Stewardship Entity.

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