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Policy Perspectives

Policy perspectives provide views from the Markle Foundation and others in areas of interest to the Connecting for Health public-private collaborative.

May-June 2009
Federal Health Data Breach Notification Requirements
The Markle Foundation, the Center for Democracy and Technology, and others comment on the new federal health data breach notification provisions to be administered by the US Department of Health and Human Services and the Federal Trade Commission.

May 20, 2009
What Will Consumer-Facing Health IT Look Like in 5-10 Years?
Josh Lemieux, Markle's director for personal health technology, speaks before the National Committee on Vital Health and Statistics (NCVHS).

April 30, 2009
Achieving the Health Objectives of ARRA
Markle proposes a set of principles for getting health IT right under the American Recovery and Reinvestment Act (ARRA).
Read document (PDF, 454K)

March 1, 2009
Collecting and Sharing Data for Population Health: A New Paradigm
Article in Health Affairs by Carol Diamond, Clay Shirky and Farzad Mostashari urges networked models for analyzing population health data.

February 24, 2009
Standards Within the Context of the Health IT Initiative
Carol Diamond speaks before the National Committee on Vital and Health Statistics (NCVHS) Subcommittee on Standards.
Read statement (PDF, 128K)

January 13, 2009
Markle Foundation Recommends Key Requirements for Health IT Investments to Improve Health Care
This brief outlines critical attributes and expectations for HIT investments.
Read brief (PDF, 307K)

December 29, 2008
Connecting for Health Responds to Government on E-Prescribing Incentive Program
A collaborative response urges focus on information to drive better medication management.
Read Response (PDF, 51K)

September 22, 2008
A 21st-Century Approach to Privacy
Policy brief outlines how to protect and share health information to improve health and health care.
Read Policy brief (PDF, 109K)

August 19, 2008
A Few Years of Magical Thinking?
Carol Diamond and Clay Shirky write in Health Affairs that one of the biggest obstacles to expanding use of health IT may be a narrow focus on how to stimulate its adoption.

June 25, 2008
A Common Framework for the 21st Century Health Care Consumer
The Markle Connecting for Health Consumer Common Framework receives widespread endorsement for its vision of increasing consumer participation and protecting personal health data.

June 25, 2008
Survey: Overwhelming Consumer Support for Electronic PHR
Survey shows that 9 in 10 Americans believe that electronic personal health records could improve their health, but privacy practices are a key factor in their decision to try one.

May 8, 2008
HEALTH IT: Markle's Carol Diamond on Making the Connections
Carol Diamond speaks to the New America Foundation about the need for making greater inroads in the development and implementation of health information technologies.

September 21, 2007
Population Health: Future Vision Scenarios
This illustrated vision shows how health professionals, consumers, and others can be connected to timely health information.
View scenarios (Flash)
Read document (PDF, 44K)

July 30, 2007
Connecting for Health Responds to Government on Quality Data Stewardship
Collaborative response to the AHRQ/AQA Request for Information Regarding a National Health Data Stewardship Entity.
Read response (PDF, 140K)

June 14, 2007
Podcast Examines Role of Privacy Protection in Public Health
Carol Diamond, MD, MPH, discusses why new systems are critical to address public health needs.

March 13, 2007
Dissenting Statement from the AHIC Consumer Empowerment Workgroup on a Proposed PHR Certification Process
Read statement (PDF, 115K)

February 1, 2007
Private Health Records: Privacy Implications of the Federal Government's Health Information Technology Initiative
Testimony by Dr. Carol Diamond - Managing Director of Health, Markle Foundation
Committee on Homeland Security and Governmental Affairs of the Senate of the United States
Read testimony (PDF, 195K)

July 24, 2006
Connecting for Health Responds to Federal Government's RFI on Voluntary Storage of Personal Data in Preparation for Emergencies
Read response (PDF, 336k)

April 6, 2006
The Connecting for Health Common Framework: Overview and Principles
This paper is an introduction to the Common Framework that puts it into context. It tells you how the Common Framework evolved from the Roadmap report (PDF, 8.0 MB) and a set of policy and technology principles, and how it has been tested in three communities via a Connecting for Health prototype. Download the paper below.
Read paper (PDF, 831k)

March 6, 2006
Letter to Secretary Leavitt and the Members of AHIC, Regarding Policy Challenges With Emerging Health Information Technology from the Personal Health Technology Council
Read letter (PDF, 87K)

October 11, 2005
Americans Support Online Personal Health Records; Patient Privacy and Control Over Their Own Information are Crucial to Acceptance

September 29, 2005
Engaging Americans in Their Health and Their Health Care Through Health IT
Testimony by Dr. Carol Diamond – Managing Director of Health, Markle Foundation
Committee on Government Reform, U.S. House of Representatives, DC
Read testimony (PDF, 54K)

August 31, 2005
Opportunities for CMS Actions in Support of Personal Health Records
Personal Health Technology Council response to a Request for Information on Personal Health Records from the U.S. Centers for Medicare & Medicaid Services (CMS), the government agency that manages Medicare and Medicaid.
Read response (PDF, 636k)

February, 2005
Linking Health Care Information
Proposed Methods for Improving Care and Protecting Privacy
Read response (PDF, 603K)

October, 2004
Financial, Legal and Organizational Approaches to Achieving Electronic Connectivity in Healthcare
Report by the Working Group on Financial, Organizational and Legal Sustainability of Health Information Exchange

July 22, 2004
Health Information Technology: Improving Quality and Value of Patient Care
Testimony by Dr. Carol Diamond - Managing Director of Health, Markle Foundation
Committee on Energy and Commerce, Subcommittee on Health, U.S. House of Representatives, DC
Read testimony (PDF, 155K)

July, 2004
Connecting Americans to Their Healthcare
Final Report of the Working Group on Policies for Electronic Information Sharing Between Doctors and Patients
Read Full Report (PDF, 2.9MB)
Executive Summary (PDF, 228K)

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